Who we Are

RareDataEU area of specialty is planning, designing and executing European wide platforms where industry, patient organizations and researchers can cooperate in rare disease clinical data collection.

George Reynolds is the founder and managing partner of RareDataEU. His career in international software management spans over forty years. 

He has worked exclusively in the rare disease registry and RWD space for over ten years. Mr. Reynolds has acted as a data scientist and policy advisor to numerous pharmas, patient organizations and researchers. 

He has managed partner agreements with Vertex, Biogen, Shire and Vifor. He has advised on registry programs in Cystic Fibrosis, Epidermolysis Bullosa, Spinal Muscular Atrophy (SMA), Huntingtons, Haemophilia, Vasculitis, Pulmonary Fibrosis and Osteogenesis Imperfecta. 

He is a regular speaker at rare disease events at Eurordis (the main European rare disease patients’ association), EUCOPE (pharma trade body) and the European Parliament.