George Reynolds is the founder and managing partner of RareDataEU. His career in international software management spans over forty years.
He has worked exclusively in the rare disease registry and RWD space for the last ten years. Mr. Reynolds has acted as a data scientist and policy advisor to numerous pharmas, patient organizations and researchers.
He has managed partner agreements with Vertex, Biogen, Shire and Vifor. He has advised on registry programs in Cystic Fibrosis, Epidermolysis Bullosa, Spinal Muscular Atrophy (SMA), Haemophilia, Vasculitis, Pulmonary Fibrosis and Osteogenesis Imperfecta.
He is a regular speaker at rare disease events at Eurordis (the main European rare disease patients’ association), EUCOPE (pharma trade body) and the European Parliament.
RareDataEU area of specialty is planning, designing and executing European wide platforms where industry, patient organizations and researchers can cooperate in rare disease clinical data collection.
In 2016 George managed the European wide tender process resulting in two clients jointly winning the €5M contract to deliver the ICT platform for 24 European Reference Networks (ERN) represent a unique rare disease innovation by the European Community to improve the treatment and research of patients with rare diseases across Europe. This game changing system was deployed in 300 hospitals throughout Europe.
